包邮泛发性脓疱型银屑病患教手册:2024:2024
- ISBN：9787576510263
- 装帧：平装-胶订
- 册数：暂无
- 重量：暂无
- 开本：21cm
- 页数：118页
- 出版时间：2024-03-01
- 条形码：9787576510263 ; 978-7-5765-1026-3
本书特色
★The Patient Education Manual for Generalized Pustular Psoriasis （GPP） is a comprehensive resource that combines the expertise of dermatologists in China with the international cutting-edge advancements in managing this rare, severe, and refractory skin disease. This manual aims to raise public awareness of this condition and provide patients with scientific nursing knowledge, methods, and a correct diagnosis and treatment path. ——Professor Gao Xinghua, The First Hospital of China Medical University ★Generalized Pustular Psoriasis (GPP） is a special type of psoriasis that can seriously affect patients' quality of life. it is very important for patients and their families to have a basic understanding of this skin disease. As one of the cosponsors of the \"Ginkgo Rare Skin Disease (GPP） Care Center\", I hope that this Patient Education Manual will provide patients with the necessary medical knowledge they need to manage their conditions and take care of themselves, involve patients more actively in their treatment, so as to achieve better treatment outcomes and benefit more GPP patients. ——Mr.Huang Rufang, Founder of Chinese Organization for Rare Disorders (CORD） ★Boehringer Ingelheim (BI） boasts rich R&D pipelines in the areas of immune and inflammatory diseases. Being innovation-oriented, we are committed to a patient-centered approach and strive to incorporate the needs of Chinese patients into our global research and development strategy, In collaboration with several Chinese dermatologists and patient organizations, BI has compiled China's first educational publication for GPP patients. Through this manual, we hope we will build a bridge of communication between doctors and patients, and provide more GPP patients with access to scientific, standardized, and humanistic patient education materials. ——Dr Zhang Wei, Head of Medicine of Boehringer Ingelheim China
内容简介
本书为《泛发性脓疱型银屑病患教手册》的英文版。泛发性脓疱型银屑病（GPP）是一种罕见的，甚至可危及生命的严重自身炎症性皮肤病，患者常面临巨大的疾病及心理负担。本书主要从以下几个方面展开介绍GPP：如何正确认识GPP，临床医生如何诊断GPP，如何评估GPP的严重程度，GPP的治疗原则以及如何预防GPP，GPP患者的日常生活提示，GPP家属专题，GPP患者及家属*关心的十个问题。本书为GPP患者提供了科学、可读性高的患者教育材料，让GPP患者能够充分了解准确的疾病知识，从而提升对疾病的认知，了解正确的日常护理方式，并加强疾病自我管理意识与能力。
目录
作者简介
高兴华，长江学者，特聘教授,医学博士，爱丁堡皇家医学院成员（FRCP）。国家免疫皮肤病诊治技术国家地方联合工程研究中心主任，暨科技部创新团队带头人，中国医科大学附属**医院副院长，国家重点学科皮肤科主任。中华医学会皮肤性病学分会候任主任委员，中国医师协会皮肤科医师分会候任会长，国际皮肤科学会常务理事，国际美容皮肤学会副会长，DTH、J App Cosmetol副主编。
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